
illness guide -alzheimer's



- HBO's The Alzheimer's Project
- Alzheimer's Association
- The Alzheimer's Foundation
- National Institute on Aging
- A Caregiver's Guide to Alzheimer's Disease, 300 Tips for Making Life Easier
Watch the series here and find tons more information on this troubling disease.
This website is a prime location to find information on treatments and research; financial, legal and caregiving help; personal stories; local chapter info; and a 24-hour helpline.
This is a great resource for information such as treatments, clinical studies and related illnesses, plus tons of caregiving help. There's also information on government resources, Medicare, and other legal/financial help.
A quick and easy reference that provides comprehensive Alzheimer's information including causes, symptoms, treatments, caregiving ideas, clinical trials and home safety tips.
This book is rich in ideas on how to care for a person with AD, with an emphasis on maintaining dignity. It is organized by stages of the disease and their respective areas of need. Get an inside look with this Amazon.com link.
How Can We Expect The Disease To Progress?
This segment below gives a brief overview of the seven stages of Alzheimer’s disease, sourced from helpguide.org. To learn more about the symptoms and common problems with each stage click on the helpguide link or check out the other helpful books and websites highlighted in our Recommendations section.
Stage 1: No impairment. Memory and cognitive abilities appear normal.
Stage 2: Minimal Impairment/Normal Forgetfulness. Memory lapses and changes in thinking are rarely detected by friends, family, or medical personnel. Half of those over 65 begin noticing problems in concentration and word recall.
Stage 3: Early Confusional/Mild Cognitive Impairment. Subtle difficulties impact functions. Try to hide problems. Problems with word retrieval, planning, organization, misplacing objects, and forgetting recent learning affect home and work environments. New learning, complex planning and organization may be impacted. Depression and other mood disturbances can occur. Duration: 2-7 years.
Stage 4: Late Confusional/Mild Alzheimer’s. Problems handling finances result from mathematical challenges. Recent events and conversations are increasingly forgotten. Still know selves and family, but have problems carrying out sequential tasks, including cooking, driving, and home management tasks. Ordering food at restaurants, independent shopping, and other sequential tasks are affected. Often withdraw from social situations, become defensive, and deny problems. Need increasing assistance with the “business” of independent living. Accurate diagnosis of Alzheimer’s disease possible. Lasts roughly 2 years.
Stage 5: Early Dementia/Moderate Alzheimer’s disease - Decline is more severe, and requires assistance. No longer able to manage independently in community. Unable to recall personal history details and contact information. Frequently disoriented to place and or time. A severe decline in numerical abilities and judgment skills leaves patients vulnerable to scams and at risk from safety issues. Even if able to dress, feed, and perform other basic daily living tasks, require supervision. Loss of current information is inconsistent and personal history is no longer reliably recalled. Duration: average of 1.5 years.
Stage 6: Middle Dementia/Moderately Severe Alzheimer’s disease - Total lack of awareness of present events and can’t accurately remember the past. Progressively lose ability to dress and bathe independently. Bowel and bladder incontinence often occur, repetitive verbal or nonverbal behaviors are present, wandering, suspicion, and other dramatic personality changes are common. Can’t remember close family members but know they are familiar. Agitation and hallucinations are particularly present in the late afternoon or evening. Late in this stage, need care and supervision but can respond to nonverbal stimuli, and communicate pleasure and pain behaviorally. Lasts approximately 2.5 years.
Stage 7: Late or Severe Dementia and Failure to Thrive. Severely limited intellectual ability. Communicate through short words, cries, mumbles or moans. When speech is lost, also lose ability to ambulate without help. Health declines considerably as body systems begin to shut down, swallowing is impaired, and the brain is no longer able to interpret sensory input. Generally bedridden, increased sleeping, seizures possible. No longer responds to environmental cues and requires total support around the clock for all functions of daily living and care. Duration is impacted by quality of care and average length is 1-2.5 years.
Stage 1: No impairment. Memory and cognitive abilities appear normal.
Stage 2: Minimal Impairment/Normal Forgetfulness. Memory lapses and changes in thinking are rarely detected by friends, family, or medical personnel. Half of those over 65 begin noticing problems in concentration and word recall.
Stage 3: Early Confusional/Mild Cognitive Impairment. Subtle difficulties impact functions. Try to hide problems. Problems with word retrieval, planning, organization, misplacing objects, and forgetting recent learning affect home and work environments. New learning, complex planning and organization may be impacted. Depression and other mood disturbances can occur. Duration: 2-7 years.
Stage 4: Late Confusional/Mild Alzheimer’s. Problems handling finances result from mathematical challenges. Recent events and conversations are increasingly forgotten. Still know selves and family, but have problems carrying out sequential tasks, including cooking, driving, and home management tasks. Ordering food at restaurants, independent shopping, and other sequential tasks are affected. Often withdraw from social situations, become defensive, and deny problems. Need increasing assistance with the “business” of independent living. Accurate diagnosis of Alzheimer’s disease possible. Lasts roughly 2 years.
Stage 5: Early Dementia/Moderate Alzheimer’s disease - Decline is more severe, and requires assistance. No longer able to manage independently in community. Unable to recall personal history details and contact information. Frequently disoriented to place and or time. A severe decline in numerical abilities and judgment skills leaves patients vulnerable to scams and at risk from safety issues. Even if able to dress, feed, and perform other basic daily living tasks, require supervision. Loss of current information is inconsistent and personal history is no longer reliably recalled. Duration: average of 1.5 years.
Stage 6: Middle Dementia/Moderately Severe Alzheimer’s disease - Total lack of awareness of present events and can’t accurately remember the past. Progressively lose ability to dress and bathe independently. Bowel and bladder incontinence often occur, repetitive verbal or nonverbal behaviors are present, wandering, suspicion, and other dramatic personality changes are common. Can’t remember close family members but know they are familiar. Agitation and hallucinations are particularly present in the late afternoon or evening. Late in this stage, need care and supervision but can respond to nonverbal stimuli, and communicate pleasure and pain behaviorally. Lasts approximately 2.5 years.
Stage 7: Late or Severe Dementia and Failure to Thrive. Severely limited intellectual ability. Communicate through short words, cries, mumbles or moans. When speech is lost, also lose ability to ambulate without help. Health declines considerably as body systems begin to shut down, swallowing is impaired, and the brain is no longer able to interpret sensory input. Generally bedridden, increased sleeping, seizures possible. No longer responds to environmental cues and requires total support around the clock for all functions of daily living and care. Duration is impacted by quality of care and average length is 1-2.5 years.

If you see a change in your parent's comfort or behavior, be sure to ask the doctor or nurse if there's been any change to your parent's medications?

"Health Guide: Alzheimer's Disease," The New York Times
"Breakthrough Discoveries Of Alzheimer's Genes," by Alice Park, Time Magazine
"Researchers Find A New Alzheimer's Gene," by Laura Blue, Time Magazine
"Breakthrough Discoveries Of Alzheimer's Genes," by Alice Park, Time Magazine
"Researchers Find A New Alzheimer's Gene," by Laura Blue, Time Magazine

